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Rare Disorders Conditions and Diseases Health


Rare Disorders Conditions and Diseases Health

Health & Nutrition

MedPro Inc. - The Needlyzer will provide a safe, efficient and cost-effective method for the disposal and destruction of hypodermic needles. The Needlyzer is a Class 3 medical device that reduces hypodermic needles and other sharps into an inert metal oxide in powdered form; it will process needles with a single hand, at the point of use, without recapping, and is available in a portable configuration. [Preview]


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- Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases are listed alphabetically for easy searching.


  • - Information about this organization as well as the CaF directory of specific conditions and rare disorders. Also details about the Rare Disorders Alliance - UK.
  • - Information about growth-related disorders through education, research, and advocacy. Member driven organization.
  • - A non-profit support group for the families and medical care providers of children and adults born with Congenital Diaphragmatic Hernia.
  • - Resource for parents and patients suffering from Neonatal Onset Multi-inflammatory Disease Chronic, or Infantile, Neurologic, Cutaneous and Articular syndrome. Site maintained by patients, parents and friends for their counterparts worldwide. Email suppo
  • - A community providing more than a 1000 different links to support groups for the people of all nations.
  • - Collects all the brand new studies in McCune syndrome and perform a FAQ session to explain what the disease is. It is a sharing experience place for ill people.
  • - Provides general information and a personal account, including pictures and X-rays. Also offers patient contact and an email discussion group.
  • - The least common, but most severe, late complication of histoplasmosis. Educational and research information. Includes interviews, patient stories, and a community forum.
  • - An article and case study of this rare disease. Includes links.
  • - Information on more than 6000 rare diseases, including current research, publications from scientific and medical journals, completed research, ongoing studies, and patient support groups.
  • - For those seeking support and information concerning the rare bone diseases: fibrous dysplasia, McCune Albright Syndrome and Cherubism.
  • - Offers an Internet portal. Includes news, forums, rare disease and orphan drug info and registration forms
  • - Information on structure, biosynthesis and pathophysiology of BH4 and tetrahydrobiopterin deficiency.



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